Well yesterday we had our forth EUA and we finally met the head doctor who does it. Nice lady not too familiar with the case but nice lady who is very reassuring and says that things are going great.
They did this thing to his eye where they give him this dye that goes through his blood steam and ends up in the tumor in his eyes so they can see how active each tumor is cause where there is blood flow there is an active tumor.
She told us that lots of the tumors have calcified which means they're dead and that the retina has almost reattached which is awesome. If his retina reattaches then he will be able to have some vision in his left eye albeit it will not be able to see from the centre of his eye but maybe around the edges (peripherals) but will have a blind spot in the middle but something is better then nothing.
So his eyes are much better but were not done with treatments yet. once a month for the next 2 years we will be going to sick kids for EUA's and then still after that we on a regular basis till he's about 5 we will still go for EUA's so we got a long time of this.
There is still a chance that we may have to do some more chemo but that won't be for 6 months and it all depends on how well the lasers and freezing goes on the rest of the tumors.
(side note) because Luke has the RB1 gene through out his entire body the chances of being exposed to radiation increase the chances that tumors may form in other parts of the body
So today our oncologist came in to talk to us about after care. and left us with some things to think about.
1) keep sun exposure limited. cause of UV rays.
2) unless absolutely necessary NO x-ray's
3) watch out for chicken pox's/ shingles
4) feed him more veggies. (now he can't argue cause the doctor said so)
5) no smoking
other then that today was pretty good day chemo went well and the day went pretty fast.
now were home and Luke looks miserable.