Thursday, July 7, 2011

July 6th

For the past couple weeks we've been dealing with some bad news from our doctor.

The tumor in Luke's left eye has has started to grow again. 3weeks ago we tried something we've never tried before which is to inject a dose of chemo around the eye. Sometimes this works Sometimes it doesn't. Today we found out that in our case it didn't work.

We were told by our doctor that we were never out of the woods and that this was always a possibility. We had never really believed her. Till 3 weeks ago when we sat down and really talked about what we should do if the shot in the eye didn't work.

We had decided that if it didn't take we would opt for one more round of chemo and then that would be it. we both feel that Luke has been through enough but that we should at least try once more with the chemo.

Today we had to stick by our decission. When we saw the pictures from the most recent EUA you could see the tumor had really grown in the last two weeks. Also there seems to have been some seeding which means that this new tumor is spitting out little tumors that are now floating around inside the eye.

1 comment:

  1. Hey there, what a wonderful blog. I came across it via a retinoblastoma page on facebook. I too have a son with Bilateral Retinoblastoma. He was diagnosed when he was 13wks old, and is now 8mths old. He has just had his 6th dose of chemo, and hopefully his last for now. I write everynow and then in a blog so he can reflect when he's older what he went through, and also so others can never forget too. My blog is called Secret Diaries of a nobody, you are more than welcome to read and follow. Its great to know you're not the only one coping with this awful cancer. Bloody BRB we call it. I wish Luke and your family every good wish I have and send some of Harry's tough spirit your way. Love from Lisa and baby Harry x